My Platform NMO Rare Disease

Tuesday, July 15, 2014

Some old favorites

Wanted to go back on memory lane before really taking off with what my new normal looks like.  I will probably go back and  forth because I encourage myself when I look back on how far The Lord has bought me from. 
Some of these are hard to look at, because I remember what was happening when the picture was taken, and before I no it I'm there all over again.  A few of these were long before the diagnosis, and those can be difficult too because I remember when ... In order to stay focus I visit but do not allow myself to get too bogged down because I need every ounce of  energy to keep it moving forward.
Started a Live Strong physical fitness program last week, and am very excited.  I have many challenges my core is still weak, balance is not too good, and my walking is retarded because of the tone in my body.
Please check out the you tube, and leave a comment.
I'm making an effort to keep things current as best as I can.  Had a wonderful day today and am looking forward to the next day.
Glory to God great things HE hath done.


www.youtube.com/watch?v=VPDKhkJgRgA

www.youtube.com/watch?v=lMWY90vsAUs

                                                            My Honey and I Nae's college graduation
NMO no where on the radar

Health South after second exacerbation                               Nae and I Sept 2011 

Home 2012 Tee and I
2012  Bday celebration

April 2012 me doing Rida's  hair

Moma and Kitty getting ready to celebrate

Dee and I Easter 2012

Christi Cox UAMS 2011

My Man and I bday celebration 2012

Dr. and Susan Byrum
                                                                    Joshua and Dee 

Sisters Me and Kitty bday celebration

Celebration April 2012

      My Mother one of a kind
       Mrs. Ethel A. Minniefield
 
 
  
                                            Sibling Love (L to R) Baby Girl Kitty
Baby Brother John, Me, Tunie
Rida in front

Branson Spring 2012


        Hair after chemo before Transplant


Christmas 2012Tee, Dee, Nae and Me
 

Chicago I am a Transplant Candidate

Soldier United States Army 1982 - 1993

 

Praise Team Church Christmas 2012 
Tee, Granny, Dee, Me, and                          
                             Nae Christmas 2012
  

 
 my niece Chaniza, and I Christmas 2012
 
www.youtube.com/watch?v=VPDKhkJgRgA

www.youtube.com/watch?v=lMWY90vsAUs

Monday, July 7, 2014

End of old, start of New

2 Corinthians 4:16-18  So we do not lose heart. Though our outer self is wasting away, our  inner self is being renewed day by day. For this light momentary affliction is  preparing for us an eternal weight of glory beyond all comparison, as we  look not to the things that are seen but to the things that are unseen. For the  things that are seen are transient, but the things that are unseen are  eternal.

"Are you mourning over your own weakness? Take courage, for there must be a consciousness of weakness before the Lord will give thee  victory. Your emptiness is but the preparation for your being filled, and your  casting down is but the making ready for your lifting up.” – Charles  Spurgeon

Of late, I've wanted to blog more times than I can remember, I'm really trying to keep things in proper prospective. To be completely honest I get so overwhelmed about what this journey has been like many times, making it tough to blog.  As I type, I remember not long ago I was unable to type, write, or wash dishes due to the weakness in my hands and fingers.
I keep pressing on because I truly believe that through it all God will be glorified, the ones coming behind me diagnosed with this and other rare neurological diseases will benefit, if for nothing else that I never forget the power of prayer, and finally to encourage myself knowing that God has planned purpose for my life.
If I could remind myself of the last eight words of the above scripture the difficulty in my life would be greatly minimized. Though difficult to admit I have to completely turn this health issue over to God. It seems as if I'm doing fine and then all of a sudden reality hits reminding me of the things I so desire to do but am unable to do.  I feel such a void where dreams were so vivid before the exacerbations.  I realize that it is time to do away with those dreams and began new dreams.
 I start a new fitness program tomorrow and am very excited.  I've accepted the fact that there will be some things that I will be unable to do, but I will deliberately focus on the things I am able to do.  I'm looking forward to getting on with living.  This is the start of New.  My inner self is being renewed for eternity.

Glory to our great God great things He hath done.