My Platform NMO Rare Disease

Monday, July 16, 2018

Our Witness: I'm back

Our Witness: I'm back: It's  been way too long since blogging, maybe I can get and stay in the groove.  Lots of things have happened, I'm still working har...
Saturday, July 14, 2018

I'm back

It's  been way too long since blogging, maybe I can get and stay in the groove.  Lots of things have happened, I'm still working hard at what I believe God has purposed my life to accomplish.  This has been the hardest job ever second to being a mother. I continue to push through the dissapoitments, discouragement, and defeat giving God the glory as I run this race. 
If I had been told after going through all I have that I would be in the situation I am in today I wouldn't believe it. 
Today feels alot like waking up in Little Rock after the doctors at Mercy couldn't figure out what was going on.  It was cold, I was hurting, and all alone.  There was chaos and seem like everything was going in slow motion. I was so scared of what was happening, but more so that I didn't have control over anything.  I could see my legs, hips, feet, arms and hands but they were heavy and uncontrollable no matter what I did I couldn't get my body function. What made this worse was how concerned the doctor was. His face had question marks everytime he entered my room.
After wrestling with every thought that came to mind with no avail I remember saying, "God Almighty do You see this?  Really this is happening after everything that has happened in my life? Why?" I wish I could say He answered me, and everything is great but that is not the case. There have been many times since then I felt like I was close to the answer, and then there are days like today, I feel like I will never know the answer and how none of it make sense. 
Scripture helps me one in particular is Job.  Some things I'm reminding myself of today is He has never left me alone  Heb. 13:5 He will instruct you and teach you the way you should go  Psalm 32:8. In my case I have to have exhausted everything I know to do that's when I'm ready to obey Him. I've learned God's character in the dark, cold nights, I'm burdened, full of fear there He draws me to Himself. As I ponder my own personal future, I see some things clearly while other things are a mystery to me. Then I remember what Job said. “He knows the way that I take; when he has tried me, I shall come out as gold” (Job 23:10). He knows the way that I take even when I don’t. He knows the way that I take even when I can’t see clearly.
Looking back, we find it easy to count our blessings and to see the hand of the Lord moving on our behalf.  So much has happened that we did not expect, we have to keep on going "it's all good"
Friday, September 25, 2015

Friday Feature

May HE give you the desires of your heart and make all your plans succeed. Psalm 20:4 NIV

Wrapping  up the work week, and doing something different with the days of the week, let's go out with a big bang...there isn't a better choice than my oldest daughter.


Celebrate with me the most ambitious, beautiful, valued, confident talented young lady's I know.  When she was little I daydreamed a lot about what she would become.  I'm so thankful for the amazing, incredibly, gifted young lady she is I could not be any prouder than I am of her.
Praying that God allows her to have many more birthdays.

Who is your feature?

Glory to God great things HE has done!!

Thursday, September 24, 2015

Thursday's Thrill

“Being confident of this very thing, that he which hath begun a good work in you will perform it until the day of Jesus Christ.” Philipians 1:6 (KJV)

Today's theme is what are  you "thrilled" about... you know what/who brings you joy?  I have so much to be "thrilled about, I am alive, I feel well today, and am learning so much lately.
I am "thrilled" to the max about this journey, and the fact that many will benefit from it.  My Pastor's messages for some time now have come from Revelations, interesting enough so is this semester's study in BSF.  This week's lesson reminded me of the confidence we have as believer's about eternity.

Glory to God Great things HE has done!

Share your thrills.

Wednesday's Worth

"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world." John 16:33 NIV

Do not be afraid, land of Judah; be glad and rejoice. Surely the LORD has done great things! 
Joel 2:21 NIV

On Wednesday think about something worth sharing.  I want to share an opinion, perhaps you've wondered why good people have to suffer.  I've thought about this many times.  For now I'm fine with the fact that I do not/never will control anything in my life.  I am confident that all things work together for good (Romans 8:28).  Jesus tells us we will have trouble in this world (not if we have trouble expect it) but we are to stay calm ...Easier to say than it is to do, I know.  
It has been very difficult and there are many days it takes everything within me to keep moving.  I made a intentional choice to see the good coming out of this journey.  I've been asked many times how do I manage, my response is I have made my choice.  
I overheard someone talking about me talking about what I have been through and how I need to just let it go .... I'll be talking about what the Lord has done for me until I'm unable to talk. I don't want to get over it.  I believe in good coming out of bad.  Let me be clear as I have said before I won't be the lady with my hand flagging down God to pick me for the next miracle HE wants to bless, but  rest assuredly  knowing all the good coming from this journey far outweighs the bad "something to shout about."  This journey is about so much more than me.  I'll tell this story again and again, for His GLOR!!!.  Some good is already happening, and I believe the best is yet to come ... stay tuned. It is all about HIM. 
The worth ... life is a journey, God is in control, knows what HE is doing, it's all good. You choose what you want to do with it, nothing we go through on earth will compare to eternity spent with HIM make sure you have a relationship with HIM.
Glory to God Great things HE has done !!!
Now your turn.

Tuesday, September 22, 2015

Tuesday Truth

For you created my inmost being: you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. 
Psalm 139:13-14 NIV 

Trying new things, from now until directed to do something else on Tuesdays let's post something that is true to your heart. The truth can be a life principal you try to live by, a scripture, the thing I'd ask is to make it positive, inspiring, or encouraging,

I'll start with mine,  a true thought from the scripture above: I live my life intentional knowing how I was created. I remind myself of this often because it is easy for me to get caught up in being what others think I should be. I'm ok the way HE created me.

Please leave a comment
Monday, September 21, 2015


Your ears shall hear a world behind you, saying “This is the new way, walk in it, “whenever you turn to the right hand or whenever you turn to the left.”  (Isaiah 30:21 NIV)
“But the Comforter, who is the Holy Spirit, whom the Father will send in my name, He shall teach you all things, and bring all things to your remembrance, whatsoever I have said unto you.”
(John 14:26 NIV)

Admission, my intention was to blog about the upcoming changes to this blog yesterday, however there are twenty four hours in everyday.  I'm sure I'm the only one who struggles with time management.  I am doing the best thing I can do about it now, the hours ran out before I could complete the task of the day ok.
I am  so thankful I am still teachable.  Please be patient and kind as I will be following HIS lead. Oh for those of you laughing and talking about how bad I am at blogging .... motivation at it's finest ... to rely on HIM, "He's not finish with me yet," Bro. Randy.  Some of the best things I've learned came after making a mess first.
All of that to say the blog is going under construction.  I am learning to be humble, and draw from those God has raised up on my be half, and unfortunately, I have a lot to learn.
Let me admit that I like learning but am having a bit of a problem with the instructor choices the Lord is making lately. A couple weeks ago my almost 14 year old instructor was helping me with some ways to keep the "peoples" engaged and I said to her "what peoples" she said "mother you have people that will visit your blog because of your experiences and what your interests are "those people." I thought to myself that lil girl may be on to something.  NMO is a rare disease so in my mind the audience (the people) may be small, I learned that is a "no no" bloggers should have large following, who knew everyone but me.
Another relentless instructor, (celebrating her birthday this week), spoke with me about my ideas for such a time as this, the journey and what we know to be a part of why HE created me.  She said "mother don't expect people to lose sleep, and be hyped about your blog," that is your job Moma."  You are the one about to release all the pressure stored in that pressure cooker of yours about this journey and the ministries coming out of it.  Take ownership because there is no passion for this journey like yours Moma."
To line up with the above advice, the Lord confirmed His word through two men Bro. Randy, and Doug Booker one said "leave up to God what HE wants to say through you" and other one said "God has specific plans for me, but HE will be working from His blueprint (if I knew it all, had it all there would be no need for HIM). 
Everyday we are planning a theme.  
From  now on, Monday is Music Monday,
Please share a song, lyrics and any other thing you'd like about music.  One of the things that saw me through some dark days and the way I choose to celebrate is through music.  I want to thank Melissa Brown for Timesia's hospital cd's volume 1 & 2 (and my last one from the link) click the link to listen to one of my favorites.  Please don't forget to comment.

Glory to God great things HE has done.