My Platform NMO Rare Disease

Monday, October 7, 2013

My faith, my help for the journey

But thanks be to God, who always leads us as captives in Christ's triumphal procession and uses us to spread the aroma of the knowledge of him everywhere (2 Cor. 2:14 NIV).
But thanks be to God! He gives us the victory through our Lord Jesus Christ (1 Cor. 15:57 NIV).
What a blessing it is to be assured that we prevail in victory according to the word of God.  We can hold our heads up high, shoulders squared, marching forward in the promise that we were created to WIN bringing Glory to God.
No doubt we will face obstacles as we go through this life on earth, “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world (John 16:33)” that’s a good time to rely on His promises.  Overcomers!
I will admit during this journey, (especially when my hands were too weak to hold my bible, or unable to reach, or push the buttons on my pc to hear the word) my attitude wasn’t what it should have been. Yeah, most Christians would have been able to walk through what I've been through with flying colors, but it hasn't been that way for me.   However at some point I did convinced myself to do something different.  I recalled scripture I’d learn from my childhood days, to the ones I’d say with my girls for our scripture for each week, and all other means I’d hid the word of God in my heart.  In fact I remember the second time around at Baptist Rehab I would pray scripture out loud, one nurse walked in on me late one night, she said another nurse passed my room and heard me, she thought I might be losing my mind. It was my routine every night, after the room grew dark, and quiet I fell asleep most nights after singing, and praying to our God, it was my routine and realize now it was faith that the positive activated attitude was restored (mindset which is essential) and continues to be my motivating force to face every day.
God has purposed a journey for each of us, we march forward relying on His promises that He goes before us, and will never leave us. I am studying the Sovereign God, and the struggle I am having is the same issue I’ve had from the beginning of this season in my life.  I’d like to say that my faith is hands down what has bought us this far, since I am taking an honest approach let me also say  I really don’t get it all… and I am learning through this study I don’t have to get it all I must just trust HIM!  I read end of the story we are victorious.
I am excited about learning, and sharing new ways to defeat the enemy (not to give him credit) but he is on his job, he came at me with fear, and doubt.  That fear, and doubt is no match to what the word says, and the enemy will flee when he is being body slammed with the word.  I meant business, praying God’s word back to Him, I couldn’t go to sleep otherwise no wonder they thought I was losing my mind. Many nights I couldn't wait for them to make rounds so that I could start because I knew God would meet me there.
I deliberately use my energy and strength thinking on the things of God, infusing His word throughout my mind. Exercising my faith putting it another way. Do not conform to the pattern of this world but be transformed by the renewing of your mind that you may prove what is that good and acceptable and perfect will of God (Rom. 12:2).
I needed a change in my situation that came about when my attitude changed.  I am marching forward, in the midst of present circumstances. Every now and again I check my attitude, the thrust from His word is necessary to keep on this journey.
Wednesday, October 2, 2013

Sunshine take a deep breathe.

God has allowed rays of sunshine to peak through the clouds off and on during the course of this journey.  I want to share one of those rays of sunshine.  I am so fortunate to have such a supporting family, our journey has not been a walk in the park by no means.  This sun ray by way of a quick vacation was a welcome of fresh air for us all.
The surprise cruise was planned for my mother and I this April (I am born on my Mother's birthday we celebrate it most of times together).  Two of my sisters, my niece and one of my daughters put a cruise packet together for our birth month, and a chance to celebrate life. 
There was no scheduled information initially about the transplant.  I ended up being transplanted end of February and under no circumstances could I go on a cruise in April.  They contacted the cruise representative, and were told that our cruise could be scheduled when we could take it.
The trip was scheduled for September praying that the transplant would go well.  Nothing was a guarantee but we prayed that God would favor our desire.  He did we all got our passports, dotted all the i's and crossed our t's.  Six month post-transplant appointment went well, so we prepared for the cruise.
 Now who would imagine going through a complete transplant and in six months afterwards going on a cruise in another country ah definitely a "God thing".  I never told anybody but I did not think that I would make it on the cruise.  Make it oh my goodness, I made it with flying colors.  I walked everywhere we had to be except for the embarkation because it was such a far walk, along with the fact that everyone except me voted for me in a wheeled chair.
There were many things to do on the cruise, but my favorite thing to do was dress and get all together and talk. We had a lot of time to do that.  This is the first time we have all been together and I feel as well as I did.  We laughed, and spent time just loving each other without a cloud hanging over our heads.  We had an uno bash too (I did not win).
 It took lots of planning, and keeping it away from me (in other words I was not in control of nothing I did not like that part)was such a blessing. I so appreciate Rida, Wanda, Nae, and Rolonda going out of their way, and succeeding to make it a wonderful birthday/life celebration.
The rain falls, but I am grateful to after the rain the He allows the sun to shine. It is because of His Son we live, we move, and have our being according to Acts 17:28.