My Platform NMO Rare Disease

Sunday, November 18, 2012

Continue the Press

Philippians 3:12-15   Not that I have already reached the goal, or am already fully matured, but I make every effort to take hold of it because I also have been taken hold of by Christ Jesus.  Brothers I do not consider myself to have taken hold of it, but one thing I do: forgetting what is behind and reaching forward to what is ahead, I pursue as my goal the prize promised by God’s heavenly called in Christ Jesus.  Therefore, all who are mature should think his way. And if you think differently, about anything, God will reveal this to you also.
I am so encouraged today that our mark is one that we can attain. As I reflect on this journey "Living to Win" effort it is incredible at how far we've come in one year.  I have so much to be thankful for.  Join me in prayer that God continue to get the glory through it all.
Wednesday, November 7, 2012


Welcome all so happy to have you visiting this blog, nothing happens by coincidence…

Psalms 119:18

Open my eyes that I may see wonderful things in your law.  I am gaining the knowledge by reading the word of God with intention to respect GOD'S plan for my life Jeremiah 29:11.  I am in a place where I live in a way that prayerfully brings Glory to God.

(Stay tuned we visit this again along the way).

I have been through some physical trials in my life that I am certain that they are a part of my story which I am coming into the knowledge that I couldn’t have “my story” without those physical misfortunes; this story may not be as incredible as it is. The story is one being told to offer hope, confidence, courage, and strength not of yourself but drawing from the all Powerful One.

While recovering from an accident, I was diagnosed with a rare disease Neuromylitis Optica aka (Devics Disease) NMO. Here is where I will pick for now, however I will mention things happening prior to this diagnosis.

I am raising money for a new trial research by way of stem cell transplant (complete bone marrow transplant) that is being offered at North West University in Chicago where

Dr. Burt a Neurologist is developing the transplant procedure.

I will detail some of the other things mentioned before, as I go along.  Please ask question as I have a wealth of knowledge that I so want to freely give in hopes to contain some of the red tape that these things can expose.