My Platform NMO Rare Disease

Wednesday, November 7, 2012

Welcome


Welcome all so happy to have you visiting this blog, nothing happens by coincidence…

Psalms 119:18

Open my eyes that I may see wonderful things in your law.  I am gaining the knowledge by reading the word of God with intention to respect GOD'S plan for my life Jeremiah 29:11.  I am in a place where I live in a way that prayerfully brings Glory to God.

(Stay tuned we visit this again along the way).

I have been through some physical trials in my life that I am certain that they are a part of my story which I am coming into the knowledge that I couldn’t have “my story” without those physical misfortunes; this story may not be as incredible as it is. The story is one being told to offer hope, confidence, courage, and strength not of yourself but drawing from the all Powerful One.

While recovering from an accident, I was diagnosed with a rare disease Neuromylitis Optica aka (Devics Disease) NMO. Here is where I will pick for now, however I will mention things happening prior to this diagnosis.

I am raising money for a new trial research by way of stem cell transplant (complete bone marrow transplant) that is being offered at North West University in Chicago where

Dr. Burt a Neurologist is developing the transplant procedure.

I will detail some of the other things mentioned before, as I go along.  Please ask question as I have a wealth of knowledge that I so want to freely give in hopes to contain some of the red tape that these things can expose.
http://www.facebook.com/timesia.hart?ref=tn_tnmn

2 comments:

  1. I just wanna say thanks mom for what you are doing and I wanna thank the membors of this blog. Please tell your freinds about this journey and tell them to join and remember were fighting to win join us.

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  2. I found you through Kelly Stamps' blog, and I'm happy to be your newest follower. I will remember you in my prayers and am donating to the fund Kelly set up for you. You can meet me over at thepolkadotshoes.blogspot.com. I am also very passionate about Christ.

    Blessings from Oklahoma City,
    Meredith

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