My Platform NMO Rare Disease

Friday, March 8, 2013

Best Day


Transplant Scripture (sent from Randy Cameron)

Philippians 2:27

New International Version (NIV)

27 Indeed he was ill, and almost died. But God had mercy on him, and not on him only but also on me, to spare me sorrow upon sorrow.

I shout every time I confess this word…

+8 day

Able to understand the cycle (refusing to accept it) the fever of unknown source causes the dehydration, drops B/P causing weakness, and then the next three hours recovering.

The pass three days the cycle has been continuous …. There is a time and a season for everything according to Ecclesiastes one cycle today, recovered in about an hour GLORY TO OUR GREAT GOD.

The day was so productive; I was able to shower, and lubricate this covering over my muscles and bones that is most commonly known as skin, so thankful Mary Kay products.

Went to the isolation rehab center and worked for 45 continuous minuets.  I know pretty impressive huh.  Spoke with my Biglil Brother who has a way of letting me be me … he had me laughing which is good free natural medicine. My middle sister called with an update on my brother in law who is recovering from a heart attack and stroke (he is their Music Minister at their church) we had a good visit and I was able to encourage her (I was so pleased that even where I am the Spirit of God can use me) agree with me for his healing Kenneth Rumper Sr.

Another blessing graced my room later Jeni the Transplant Chaplin, she was apologetic about not being here to bless the cells before transplant, I assured her God was totally in control and His divine appointment was best. We talked about how the physical issues will seep into our spiritual being and cause doubt, fear, and a sense of loneliness.  She reminded me of Psalm 23 very comforting. We had to watch my sister’s service online they live feed, and we have also had the privilege of going to our vimeo and our service because there are no Christian channels on the hospital TV. We gave her information, she was thrilled she said many people ask for resources and she has some to give Yay Dave and the Crew.

One more thing up late watching the news last night (thanks to steroids). Remember I am in Chicago (which doesn’t matter news for me ends after the weather no matter where I am) I’m wired so I watch the entire sports from hockey, to basketball, and everything in between, and then the sports guy strings me along he says you want to make sure you come back after the break for an incredible story so now I am talking to the TV to hurry on with their commercials. The story comes on about a women diagnosed with cancer with seven children who wins 20,000 my sister and begin to pray thanking God for His provisions but understand the cost of medical care will quickly consume that 20,000. I lay down to sleep. My Soldier Sista for the Savior Susan called and we go through our chatty routine, I give inside updates she gives me outside updates, and we think ok is there anything else and she says one that blessed me and she starts the sports guy story … I say oh I saw that last night she says well you know who that is I say no she says that is Hutch’s brother … WOW

 This has been the best day since having the transplant and we believe for more of the same.
Wednesday, March 6, 2013

One week Transplant Old

I was made aware that my blog post have not been posting...(spoke about my lack of being techo before), and those post were not saved so let my monster blog marathon begin ... I thought that I'd finish several projects,blog, sort my nicknacks with all the time on hand, nothing could be farther from the truth.  Each and every day has it's own happenings and we are along for the ride.  For example today started with me thinking about Lakeside Baptist Church and my Uncle Chicken singing

Oh, to be “Kept for Jesus!”
Kept, by the power of God;
Kept from the world unspotted,
Treading where Jesus trod.

Oh, to be “Kept for Jesus!”
Lord, at Thy feet I fall;
I would be “nothing, nothing, nothing”;
Thou shall be “all in all.”

Oh, to be “Kept for Jesus!”
Serving as He shall choose;
“Kept” for the Master’s pleasure;
“Kept” for the Master’s use.

Oh, to be “Kept for Jesus!”
Kept from the world apart;
Lowly in mind and spirit,
Gentle and pure in heart.

Oh, to be “Kept for Jesus!”
Oh, to be all His own;
Kept, to be His forever,
Kept, to be His alone!

and looking around seeing the older people crying ... well I did not understand then but I do now what a joy it is to be kept by Jesus. Such a peaceful time, prayed, read my word while waiting on the transplant team spiked a temp that took the entire day to break. Fever comes in at #3, Cytoxan #1, and Neuprigen Injections #2.  After such high temp for so long it is really easy to be completely wiped out I remember feeling this same way two days ago and relied on Isaiah 40:29 that when I am so weak He (my Keeper) will increase my strength.
Transplant team comes in go over the process today is +7 I am one week transplant old so funny I am cracking up right now because a little while ago Joshua called to tell me my AARP membership info came in the mail today. We expect the white count to go up at anytime is what the team say. 
I am so ready for that and my everyday confession is ..
My immune system grows stronger day by day. I speak life to my new system You have given me.  I forbid any confusion in my new system.  The same Spirit that raised Jesus Christ from the dead dwells in me and quickens my immune system with the life and wisdom of God, which guards the life and health of my body in Jesus name.
 

 
Friday, January 11, 2013

God used You

I have a body full of stuff to say but small bits of time here and there to say them. Let me first start with a mighty word of God.
Even so, let your light shine before men; that they may see your good works, and glorify your Father who is ...in heaven.
For all of you FB sisters and brothers (many of you do not know me, nor do I know you) who allowed your resources to be used collectively to make up the 30,000 for the transplant may you reap what you have sowed over and beyond what you unselfishly gave to the Glory of God. All of you will be happy to know that the recommended amount to schedule the transplant has been recieved by the hospital. The transplant will happen because of your obedience to give.
Now one more thing (at least for this post) for those of you that are not sure about miracles let me just say that the fact that I am here typing is nothing short of a miracle not to mention raising a crazy amount of money in a short amount of time (when the financial experts say how bad this economy is and how one can afford to give). As far as the medical miracle goes stem cell transplants are being used for all sort of illnesses, and disease a miracle indeed.
I challenge you all to continue to avail yourselves that God will use you for the purpose He designed you for. As for me I am in a new season and it is difficult at times because I am so used of God using me like He did before. I am having to learn to let go of the frustration because I am not what I used to be instead learning that God is the one who validates me that there is a lot of purpose for me to fufill, and guess what doesn't matter how it looks, or if I take more time to get to the matter ... as long as it Glorifies God I'm good with it. I won't be wasting any more energy (none to waste) or time on anything else except it brings Glory to God what about you?
Tuesday, December 18, 2012

Soldier Sisters

“Thou therefore endure hardness, as a good soldier of Jesus Christ. No man that warreth entangleth himself with the affairs of this life; that he may please him who hath chosen him to be a soldier.”
2nd Timothy 2:3, 4
So thankful for the opportunity to be able to share, with my
"Soldier Sisters" in Christ, of FBC, Bentonville, AR. They are beautiful both inside and out....they continue to exude the love of Christ, by loving others, and I am so thankful to know all of them, and know without doubt their love for me.
Satan's job is to still, kill, and destroy, but God is greater than that
and I know He wants what is best for me.  Since beginning this journey many times I have felt like I have been on public display, but I still say "yes".  Most of the times I am able to mask the way NMO, affects my mental capacity and the ability to convey what is in my head through my mouth, which is so frustrating.  I have done public speaking for various organization so I know when it doesn't go so well.  An example of the love the women of FBC is how they sat and tentively listen while I struggled to literally connect words that made sentences.
Sunday evening started  all of my reflections of just how far the Lord has bought me.  While taking the "Lord's Supper" I thought to myself He has bought me from a mighty long way.
Nancy was sitting next to me and I reached to get the cracker and realized that I would make a mess so I asked her to hand me a craker, from that moment I began to cry because there was a noticeable difference, I took the cracker with control and held it between my index, middle finger, and thumb until it was time to eat it. Glory!
I was trying to compare the Modern Soldier, with the Christian Soldier during my testimony the above is an example of what the results can be of the Soldier that keeps on keeping on in order to accomplish the mission ...no matter the mission ...mine happens to be Living to Win this NMO fight, after all we know the end of the story.... God is Glorified!!!! 
Friday, December 14, 2012